Although a formal committee of Brighton & Hove City Council, the Health & Wellbeing Board has a remit which includes matters relating to the Sussex Integrated Care Board (ICB)), the Local Safeguarding Board for Children and Adults and Healthwatch.

Title: Learning from the Lives and Deaths of People with a Learning Disability and Autistic People (LeDeR)

Date of Meeting: 03 March 2026

Report of: NHS Sussex Integrated Care Board

Contact: 

NHS Sussex

Email: sxicb.leder@nhs.net

Wards Affected: all

FOR GENERAL RELEASE

Executive Summary

This report presents learning from the most recent year’s (2024-25) reviews into the deaths of people with a learning disability and people with autism. The LeDeR programme reviews deaths in order to help identify the service improvements required to address the health inequalities experienced by people with a learning disability and people with autism. The report details the performance and progress of the LeDeR program in Sussex in 2024-25. This includes service improvement work undertaken across the Integrated Care System (ICS).

1. Decisions, recommendations and any options

1.1 That the Board notes the information provided in this report (Appendix 1).

1.2 That the Board approves the organisations represented on the Board utilising the learning from LeDeR and developing formal internal cascade processes in order to impact on the reduction of the mortality gap for people with a learning disability and autistic people.

2. Relevant information

2.1       LeDeR has been operational in Sussex since 2017, with the annual findings of     LeDeR reported to the relevant service and service commissioners and       shared with Sussex Health & Wellbeing Boards for information.

2.2       Appendix 1 contains the Sussex LeDeR Annual Report for 2024-25.

3.         Important considerations and implications

            Legal:

3.1 LeDeR is not a statutory function but a NHS policy led Service Improvement Programme. There are no specific legal implications arising from this report.

Lawyer consulted: Sandra O’Brien                       Date: 12 February 2026

            Finance:

3.2 There are no direct financial implications arising from this report for Brighton & Hove City Council.

Finance Officer consulted: Sophie Warburton   Date: 18/02/2026

Equalities:

3.3 The purpose of the LeDeR programme is to reduce the health inequalities people with a learning disability and autistic people face, by attempting to understand the determinants that underpin them. Sussex commits to the delivery of the LeDeR program which supports the protected characteristics of people with a learning disability and autistic people and works to support a target population of people within the Core20+5 group.

Sustainability:

3.4 No implications identified

Health, social care, children’s services and public health

3.5 These implications are explored in the LeDeR Annual Report 2024-25 (Appendix 1)

Supporting documents and information

            Appendix1: Sussex LeDeR Annual Report 2024-25

            Appendix 2: LeDeR presentation slides

            Appendix 3: Sussex LeDeR Annual Report 2024-25 easy read version